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Three sisters pose at Ivy Street Family Day

"What Now?" Panelists

MAB's annual meeting October 14, 2009 featured the presentation "What Now? A Panel Discussion on Best Practices for Helping Adolescents with Brain Injuries Prepare to Live Full Lives as Adults." The panelists were:

  • Ron Allen, Ph.D., Director of Brain Injury Services at the Ivy Street School
  • Anthony Joseph, M.D., Neuropsychiatrist
  • Neal McGrath, Ph.D., Neuropsychologist and Founder and Clinical Director of Sports Concussion New England
  • Amanda Smart, an Ivy Street School graduate
  • Marilyn Spivak, founder of the Brain Injury Association of America

    The panelists lent their expertise in the discussion of how to answer the question "What Now?" for each student who has had a brain injury, from both clinical standpoints and Amanda's personal experience of brain injury recovery. Debra Kamen, M.S., Director of Brain Injury and Statewide Specialized Services at the Massachusetts Rehabilitation Commission, moderated the panel and provided her own insight as well.

    Each panelist spoke individually about their personal thoughts on best practices in brain injury rehabilitation for adolescents, and it then opened up into a forum for audience members to ask questions. Ron Allen commented on the issues of not telling adolescents with brain injuries to simply "accept their disability" and instead working with them toward their personal goals. He also remarked upon the evolution of the Ivy Street School over the past decade, reflecting changes in practices in the field. Amanda Smart gave a poignant speech about her own brain injury recovery experience, noting, "I don't think the recovery process ever ends. I had my accident over ten years ago and I am still recovering today."

    Marilyn Spivak, hailed as "the Mother of Brain Injury Awareness," touched on the importance of families in the brain injury recovery process, and called attention to the pressing need for specialized schools like the Ivy Street School, few of which exist nationwide. Debra Kamen remarked what a small percentage of children and adolescents receive specialized treatment and rehabilitation after they are released from hospitalization, and Marilyn declared that it is for these young people in need that she hopes the Ivy Street School will continue to grow in the future.

  • "You are helping those who are less fortunate. You’re bringing joy to hearts that could be filled with sorrow. You are fulfilling the various dreams of those who felt it was impossible to have dreams and believe. I know that from just my experience and my lifetime. Just having people that cared a little bit, that said to me even though you are blind you are blessed to be given that challenge to do far better than you could even imagine."

    - Stevie Wonder


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